Common questions

Can you grow out of juvenile myoclonic epilepsy?

Can you grow out of juvenile myoclonic epilepsy?

JME is usually well controlled with medication. Most patients with JME do not outgrow their seizures and will need to take medication for the rest of their lives. Individuals are encouraged to get enough sleep and avoid alcohol to reduce the likelihood of seizures.

What does juvenile myoclonic epilepsy look like?

Myoclonic jerks or seizures in JME typically happen within 1 to 2 hours of waking up in the morning or after a nap. They are described as shock-like and irregular movements of both arms. Sometimes the movements happen only in the fingers, making the person look clumsy or prone to dropping things.

Is juvenile myoclonic epilepsy rare?

Juvenile myoclonic epilepsy affects an estimated 1 in 1,000 people worldwide. Approximately 5 percent of people with epilepsy have juvenile myoclonic epilepsy.

Can juvenile myoclonic epilepsy be cured?

After the age of 30, the seizures tend to get better. And medications can keep JME under control. But most people with the condition will need to take the medicine for the rest of their lives, even if they stop having seizures.

How common is JME?

Juvenile myoclonic epilepsy (JME) is a common epilepsy syndrome, which occurs in 7% of all people with epilepsy.

Is JME a disability?

While Myoclonic Epilepsy and Ragged Red Fibers Syndrome is now considered a Compassionate Allowance by the SSA, and therefore qualifies for expedited processing, the diagnosis alone is not enough to be found eligible for disability benefits. You must include substantial proof of disability in your application.

Is JME focal epilepsy?

Juvenile myoclonic epilepsy (JME) may coexist with focal epilepsy. However, the coexistence of these two types of epilepsy has been rarely reported (Diehl et al., 1998, Koutroumanidis et al., 1999, Usui et al., 2005, Jeha et al., 2006).

What part of the brain does juvenile myoclonic epilepsy affect?

PURPOSE: Previous studies using advanced imaging techniques have suggested subtle structural and functional changes in patients with juvenile myoclonic epilepsy (JME), mainly associated with the frontal lobes.

Are myoclonic seizures epilepsy?

This type of seizure causes quick jerking movements. Myoclonic seizures often happen in everyday life. This includes hiccups and a sudden jerk while falling asleep. The condition is not epilepsy unless there are more than two seizures happening repeatedly over time.

Can juvenile myoclonic epilepsy be misdiagnosed?

If correctly diagnosed, up to 90% of people with JME become seizure-free on a regimen of medication, usually Depakote (valproate). Unfortunately, JME is often misdiagnosed, delaying the start of effective treatment. Even neurologists in excellent epilepsy centers sometimes misdiagnose JME.

Can you drive with myoclonic seizures?

Yes. California’s Department of Motor Vehicles can revoke or suspend a person’s driver’s license if they suffer from epilepsy, seizures, or a lapse of consciousness.

What do you need to know about juvenile myoclonic epilepsy?

Juvenile Myoclonic Epilepsy. They happen shortly after waking. Generalized tonic-clonic seizures occur in nearly all people with JME. The cause is predominantly genetic. An EEG is the most important way to diagnose JME. Seizure medication often controls seizures well. People need to take seizure medicine throughout their life.

When do myoclonic jerks lead to generalized tonic clonic seizures?

The myoclonic jerks generally precede the generalized tonic-clonic seizures by several months. Sleep deprivation is a major factor in triggering seizures in JME patients.

Is the myoclonic epilepsy gene autosomal dominant?

Studies have indicated that inheritance is autosomal dominant, however, it has incomplete penetrance, which means that some people who inherit the gene or genes associated with juvenile myoclonic epilepsy do not develop symptoms.

How old do you have to be to have myoclonic seizures?

Myoclonic jerks may as well appear in clusters. Other seizure types include those with either motor or non motor generalized onset. The onset of symptoms is generally around age 10-16 although some patients can present in their 20s or even early 30s. The myoclonic jerks generally precede the generalized tonic-clonic seizures by several months.

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Ruth Doyle